The waiting place.

Today we had a good Individualized Service Plan (ISP) meeting with some of the team that manage our son’s adult day program, and with whom he is wait-listed for residential placement.

He’s in a priority position for placement in a well-staffed setting because of his seizure disorder.

But the waiting goes on.  As noted in the meeting minutes,

⦁ Mom stated that during Joey’s seizures she cannot move Joey or heavy objects out of Joey’s way to ensure his safety due to her own health problems.
⦁ [Staff] also mentioned that currently due to the staff shortage, this may hinder immediate placement for Joey simply because there is not enough staff to safely care for Joey’s needs in the residential setting. The team understood this and agreed to it.

Staffing is the issue.  Funding for staffing is one dimension; so is finding people who want to be caregivers in a special needs environment.  It’s not a criticism of any person or program to admit that the folks who can do the job well and stick with it over time can be hard to find.

So the wait continues into another year.  It’s ironic because there’s no real resistance by any party – everybody involved wants a good placement for Joey.

As Dr. Seuss wrote,

Waiting place

From the linked page.

Waiting for a train to go or a bus to come,
or a plane to go or the mail to come,
or the rain to go or the phone to ring,
or the snow to snow or waiting around for a Yes or No
or waiting for their hair to grow.

Everyone is just waiting.

Waiting for the fish to bite
or waiting for wind to fly a kite
or waiting around for Friday night

or waiting, perhaps, for their Uncle Jake
or a pot to boil, or a Better Break
or a string of pearls, or a pair of pants
or a wig with curls, or Another Chance.

Everyone is just waiting.

You know, I’m typing this while waiting for his bus to bring him home.  And he’s waiting for an expected movie to be delivered and will be asking about it again.

The staff shared sad stories of special needs families unable to moved to a long desired retirement state or with a job opportunity because the wait lists in the new state are too intimidating.  There are cases of parents in their 80s who still have a special needs dependent at home, and it ain’t because they want it that way.

Everyone is just waiting.

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