Not gonna write about stinky stuff, even though I am running between the kid’s bathroom “incidents” today.
Instead, there’s good news to share. I hope this will encourage you, especially if you are running between incidents. Hang in there. Some stuff gets better.
Last Saturday, we drove 2 1/2 hours to visit friends down in Iowa.
On the trip, it hit us just how much a few bits of Joey’s life have improved with age.
Here’s a picture of Joey and Melissa, as the sun set and we waited in a parking lot for our friends to arrive. It doesn’t seem like that long ago that Joey might have had a violent melt down or suffered a seizure after a long car ride to a strange place. As you can see, he’s far from anything like that. He cooperated when I asked him to walk over to the bushes for a picture. He didn’t pull away when Melissa leaned close. He looked at the camera and smiled for the picture.
We’ve seen a lot more of his happy, smiley self since his psychiatrist eased him off of Adderall. Joey was on it for years, to help with his short-to-nonexistent attention span. But it is a stimulant, so it kept him anxious.
The Doctor theorized that Joey’s age had settled some brain chemistry and set about reducing some of his meds. So we took the risk of tapering the Adderall dose down until it was finally eliminated. And we’re all enjoying more of Joey’s joy as a result.
We had a great dinner with our Iowa pals. Joey was patient and good company. Evenings like that used to be impossible. Joey would have been out of his chair, making noise, grabbing stuff off of other tables and running outside. He would have been plenty upset and would have shared that wealth generously.
He’s come so far to just sit at the table as a pleasant young guy. Can’t point to any particular therapy or medication for that – it seems to have come with age. A fringe benefit of just hanging in there.
We got to stay out pretty late with our friends. In years past, we would have had to end any socializing too early, because Joey’s meds would knock him out and we would need to lug him home to bed. He used to take Seroquel to help him sleep, because for several years he hardly did and neither did we. But the Doctor tapered him off of that, too, and he seems to have outgrown the need for it. His sleep habits are pretty much like most folks’.
Not everything gets better (says I, running stuff to the laundry room). But some things do.
Be patient, therefore, brothers, until the coming of the Lord. See how the farmer waits for the precious fruit of the earth, being patient about it, until it receives the early and the late rains. (James 5:7)